Tuesday, September 17, 2013

Pit bulls steal challah bread...


Pit bull update - Malia and Casey are getting along swimmingly. They apparently had only one tussle -- and it was over a loaf of challah bread!

I had left it too close to the edge of the counter in the kitchen and we went out to run errands. I know it was Malia (since Casey isn't bold enough to counter surf). She must have filched the bread, then pulled it into the living room and she and Casey must have had a short fight over who got the loot.

We came home to some plastic from the bag that the challah was in, but no sign, no crumb of any kind. They were laid up, fat and happy from engorging themselves.

Here's Casey (top) watching Restaurant Impossible while Malia puts her head in my lap.

As expected, Casey, who is about 2x Malia's weight was the wimp. She ended up with a boo-boo on her nose that has left a scar, but otherwise you'd think nothing happened.

They really do love one another -- they play fetch and tug of war, sit together on the sofa, and even sometimes sleep in the too-small-for-two-dogs bed. Malia gives her kisses, and, as the new dog, always looks to Casey for guidance.

It has been a great match; it's wonderful to give another pit a forever home.

RA update: travel success + methotrexate = proceed with caution

Some good news and bad news. At my rheumatologist visit last Friday I was able to tell her that there's a definite difference in pain relief when I take both methotrexate and Enbrel. I went on Enbrel alone for two weeks (dosing on Fri), was sick about half the weekend, and my relief lasted from about mid-day on Monday-Thursday. By Thursday evening, it's like a wind-up doll that's kaput and someone took out the key. I am toast, and in searing pain.

On the MTX plus Enbrel, my relief is from Monday AM to Friday afternoon. That's not bad. I'm dosing only 4 pills rather than 6. I was having way too many adverse side effects from the MTX -- GI problems, depressed mood, severe fatigue, aches and pains. On the lower dose I have little mood effect, and less-severe overall symptoms. [The only problem that has cropped up, and it's a weird documented side effect, are nose sores/nose bleeds. Oy, it's annoying and painful at times. Will have to mention that at my next visit.]

So that's the overall good news. The bad news is my last labs showed a spike in some of my liver numbers. MTX affects the liver and there's enough concern that they asked me to come back in 2 weeks for another blood check. I already come once a month for blood work, so my guess is that staying on MTX is in jeopardy if my numbers don't look good.

Some other good news is that I was able to successfully travel for work last week. Successful as in I didn't need wheelchair assistance, I managed stairs, and was able to work well at the conference during the day. Thankfully one of my colleagues (thanks, Lee!) who was attending the conference volunteered to help carry my bags at times, and drove the rental car so that I didn't have to endure long walks or drives.

At night I was toast by about 7:30, and went back to the hotel to crash, re-medicate, apply all my liniments to my sore joints and get in the sack so I could be productive the second day.

I actually had to go into the office the day after the trip; it was questionable whether I was in good enough shape to get my sorry ass into the office, but I did for an important meeting. However, I was out Friday, and then most of the weekend I was in misery, recovering from the travel's impact on my RA and fibromyalgia.

I know for a fact that if I hadn't done the Enbrel/MTX combo, I would have been much worse off post-travel. So, I hope that, despite the pretty nasty MTX side effects, I won't have to discontinue it since it has done some good in getting my constant pain at a liveable, if not enjoyable, level.

Tuesday, September 3, 2013

Aw, crap - disc re-herniation...and other fun news

I've been avoiding this topic for a while because, well, I figured there's not a lot to done about it.

I had a bilateral L5-S1 discectomy in January; it brought me great relief from severe sciatica pain. Instantly. Over the last 8 months the normal post-op numbness had been retreating down my left leg to just above my left foot; there was a chance that my ankle and foot would remain numb because of damaged nerves. That was fine.

But over the last month, my left leg  started to go numb, the sensation creeping back up my leg to just above my left knee. My leg was also markedly weaker again. I was afraid that I had somehow re-herniated my disc (though I am careful about lifting heavy objects) so I went to my surgeon and he had an MRI done.

Got my results today and it was a bit surprising -- I have re-herniated, but on my RIGHT side:


There's a lot of technical jargon up there, but essentially, the surgeon explained that the probably cause of the symptoms on the left side is from the general degeneration of the disc, or as he said "it's probably shot -- fragmented and compressing/collapsing." The only solution for this is fusion.
Lumbar spinal fusion is a type of back surgery in which a bone graft is inserted in the spine so that the bones in a painful segment of the spine fuse together. The fusion aims to stop the motion at a vertebral segment, which should decrease the pain caused by the joint. After the surgery it will take several months (usually 3 to 6, but sometimes up to 18 months) before the fusion is set-up. This surgery has been improved over the last 10 to 15 years, allowing for better success rates, and shorter hospital stays and recovery time.
Right side, reherniated (the bubble you see see).
Another view -- I may not feel pain on the right because the prior surgery created space, relieving pressure (white space).
I'm not in what I consider acute pain, just a lot of numbness and general discomfort. My leg drags a bit. The surgeon and I agreed that it's not time for surgery. Walking long distances for exercise has become painful again, recovery from the pain inflicted from impact is draining.

From the left side, the murky area full of scar tissue;
notice the compression in that disc vs. healthier 
one above.
Well, in my case even if I did want to have surgery I couldn't -- I don't have enough FMLA to cover the recovery time. Yes, that's right. I have to work with a herniated disc until it becomes an emergency situation, as it did for me back in August. 2012. He said it's hard to get Blue Cross/Blue Shield to approve a fusion otherwise anyway.

Regarding the issue of the herniation on the right side, it makes no sense to operate unless there is acute pain involved, and there is not --  I'm asymptomic on the right side, save the neuropathy that pre-dates the spine injury.

So my options from his POV are PT, pain medications and/or epidural steroid injections, until the disc degenerates enough to require surgery. I'm going to tough it out with Aleve and occasional pain meds I use for my RA.

Not sure how this will affect my travel (I have a couple of upcoming trips and they will do me in re: my RA anyway; nothing like wondering if you're going to re-herniate yourself into the ER. But I cannot live trapped by the "what ifs".

Related:
* Back to work...butthurt begins in the chair
* Cleared to go back to work!
* Working my way back to trek across the Brooklyn Bridge for my big 5-0
* Milestone: tanking up...and a good day for PT walking (finally)
* RA rears up and says "don't forget about me."
* Can put on jeans again!
* Not so fast, young lady...your back is still f'd up
* Post-surgery update: tail end of flu; may need another MRI
Week 3 post-spine surgery, week 2 of the flu
Week 2 post-L5-S1 slice and dice: good news, not so good news
News on life after the L5-S1 slice and dice

Tuesday, August 27, 2013

We get mail...strange marketing mail. I am involved in a covert TP operation.

We rarely get products in the mail to test out; maybe we're not in the right zip code. One time I wrote about the joys of the Swiffer (this was when it first came out), and wrote about it on my web site (this was pre-PHB), and Procter & Gamble sent me one of their first WetJets. Guess the PR people scanned the web for positive reviews and rewarded customers with some (useful) swag.

That's the last time I recall receiving "free stuff" of value in the mail. Well, today I received a little box marked "Top Secret Info For..." and "Remember: Just Act Natural" and "Scott Secret Swap" on it.

What could it be?

Had to hot foot it into the house to open the box. My guess was correct -- if it's Scott, it must be a roll of TP.

One can only hope that "Scott Naturals" -- whatever that means -- is less tortuous than standard 1000-sheet Scott TP. That traditional one is like sandpaper. Apparently, the "Naturals" series is made out of recycled material.

This campaign is kind of amusing.

YOUR MISSION
Swap out the roll you’re using now with a roll of Scott Naturals™ without telling your family.
If you find yourself in danger of being discovered, just follow these three simple steps:

SWAP your roll for Scott Naturals™.
WATCH as your family never notices.
ROLL on without sacrificing quality.

Remember your training, and good luck.
The box also came with a coupon for $1.25 off of a pack of 12, so I guess the company is pretty anxious to crack into the eco-friendly heinie wipe market. Scott has gone so hog-wild on this covert campaign concept that it also has this Top Secret Video (oops, I'm declassifying the mission!):




Thursday, August 15, 2013

The Advocate asks - Is Pam's House Blend Impossible to Reproduce?

I laughed when I saw this headline at the Advocate's web site -- you only see it when you share the article on social media such as Facebook. The actual headline is:

Good to the last drop - Pam's House Blend"Good To The Last Drop:
After a decade as the loudest — and sometimes only — digital voice in the South coming from an out woman of color, Pam’s House Blend closed up shop July 1. Now she may never be replaced."


I was interviewed a few weeks ago by The Advocate's Sunnivie Brydum about the end of the Blend's run and completely forgot about it -- I've been snowed under on the day job that I've held all during the nine-year run of the blog. It's what keeps the roof over my head; blogging was never profitable for me, and I explained why in the piece:
"Despite its countless accolades and ever-increasing traffic, the Blend never gained the type of financial foothold that some more mainstream, news-heavy LGBT blogs have secured. Spaulding believes the reason behind that is two-fold. First, Spaulding’s refusal to run what she calls “skin ads” — services targeting gay men with often racy images — that pay handsomely, kept the Blend’s earning potential relatively limited. And, “while the work at [The Blend] was important, it didn’t necessarily entertain in the same manner as those blogs that would generate advertising of that sort anyway,” says Spaulding, referring to higher-traffic sites largely targeted to and run by gay men like Towleroad, Joe.My.God, and Queerty. “At the same time, [Blend] readers were looking for connections to the content to their lives as LGBTs, people of color, people not from gay ghettos. That kind of content may generate awards, and reach readers of influence, and even get me invited to speak on the panels at important conferences, but it doesn’t pay the bills.
Which is why, throughout the Blend’s existence, Spaulding held down a full-time job in addition to her tenacious blogging. But the toll of working essentially two full-time jobs — while only receiving the salary of one — eventually wore on Spaulding, who struggles with several chronic health conditions, including rheumatoid arthritis and fibromyalgia. A decade of hard work depleted Spaulding’s reserves to the point that she decided to close up shop in July."
And about the question regarding the Blend being impossible to reproduce --  it's true -- and not because of yours truly, but because "new media," blogs and traditional news media were in a very different state way back in 2004. Would a black lesbian (and unknown) voice producing a political blog out of NC even be noticed in 2013? Read the article and weigh in.

I love the bit at the end of this piece (I didn't suggest it, btw):

"Spaulding still maintains a personal blog at PamSpaulding.net, where she writes about non-political passions including health, pit bull advocacy, and her favorite — if much-maligned — band, Journey."

Yeah, baby!

Journey sampler






We have a new addition to the furry family - Malia the pit bull

We brought in Malia -- adopted from the Wake County Animal Shelter. She's about 3 years old, has probably had one litter. She's spayed now, of course. She's sweet, quiet and is very housetrained. Not one mistake in the house during this first 3 weeks with us!

We weren't looking for another pit bull, but she stood out in the crowd because she had just the right temperament, quiet, cuddly, and playful. Not high-energy, just loves to run in the backyard.

Casey, our other pit, is taking it well -- she's so passive that she's barely growled a couple of times, and has even played with Malia. A few photos:


Sunday, July 28, 2013

Half the weekend lost to biologics...the trade off that allows me to work.

Argh. Friday Methotrexate/Enbrel dosing has me sore, sick and feeling awful moodwise this AM -- all "normal" side effects. I did OK on Sat, but now it hits like a ton of bricks, including fluid in my lungs when I wake up. I know it will get better by Monday -- all the symptoms go away -- but I hate losing half of my weekend to this "therapy" for RA. I know others out there know the perils of biologic meds all too well.

It's not the picture they paint in the TV ads. But I get a good 3-4 days out of this treatment (so I'm able to function at work) before I crash and burn again. Friday's trip to the rheumatologist had me reduce my MTX dose to 5 pills instead of 6 to mitigate slight upward trend in liver damage numbers as a precaution. Rest of labs OK.

I did have the energy (and lack of nausea) to go to look at doggies at the shelter; we're still mourning the loss of Chloe, but we know eventually we'll find the right one to fit in our family.