Thursday, January 2, 2014

Unintentional lessons learned from Accredo/Express Scripts F'up - just how much my RA has progressed

Not a good day - day 6 without Orencia (RA med). Made it into work but all of my joints hurt miserably (driving really hurt, limping, have pressure gloves on, pressure socks on, lots of liniments, Aleve). I will take the injection tomorrow so I'm back on schedule, but this is misery. I couldn't take today off, but I will have to tomorrow since it will make me sick.

Bright side (I have to try to find one!): I guess Accredo/ExpressScripts' F'up on delivery last week, leaving me w/o a dose, taught me just how effective biologics like Orencia work to reduce the progressive joint inflammation of rheumatoid arthritis. It also showed me just how much worse my RA has gotten since diagnosis and beginning biologic therapy -- all my finger bones, my wrists, elbows, hips, knees, ankles and foot bones are affected. There is new, troubling pain in the cervical vertebrae (neck) that I never had before. I will need to report that to my rheumatologist next time around.

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