My primary issues are the flu-like symptoms -- all-over body and joint aches, unnatural fatigue. Those last about 3 days. Then I have relief -- very little joint pain. The issue is whether over time I will have less days of side effects and more days of relief. I think this is week 7, so it's still a bit early to tell. I don't think I'll go the needle route for now. It's old school -- in a vial -- which makes it more annoying to deal with. I take my insulin and other injectables (Victoza, Lantus) via pen, which is much easier to deal with. At 4-5 shots a day, I'm already a human pin cushion. I'd like to avoid more if possible.
Anyway, the doctor also said that if MTX doesn't give me more relief after another month (I have to do labs again to monitor its effects on the liver for the first few months), I can try adding Enbrel back. That's another biologic sledgehammer drug. It gave me about 5 days of relief. Apparently together these drugs have been proven to be more effective than alone. But it means a real whammy those first two days on the combo.
Joint pain has been so bad this week that I've had to wear my wrist wraps even at night. My knees have been on fire. Only on Friday did I have anything resembling pain below a 4. It's been a steady 6 all week.
Ah, life with RA. Never simple, never pain-free. It's where things are.
I'm looking forward to going to NYC for my birthday (July); I hope that these med adjustments allow me to do a relatively pain-free walk across the Brooklyn Bridge. I may need to alter when I take them (I usually dose on Saturday evenings), so that I am not sick as a dog for the Sunday walk.
|I think this was taken in 2007; on that day Kate, my brother Tim and I walked across to Manhattan and all the way up to Union Square. All that was possible before the fibromyalgia and the rheumatoid arthritis.|
But I will do it. I have to.